I've delayed on this post...well for several reasons and I'll leave it at that pretty much. As of last Wednesday and the long trip up to Tucson to see doctors, we are officially closing the chapter in Little Bugs life called "Living with Epilepsy". The first 250 mg of Depakote as dropped and all things are fine. Her second 250mg drop comes this Wednesday, and come December 24th on Christmas Eve, she will drop her final 250 mg dosage. Christmas morning will be the first time in 4 years 10 months that she is not going to have to hear me say the words "Did you take your medicine?" We will see the doctors one more time come June to see how she is doing with migraine issues, but after that we are done. Little Bug has the mutated migraines that may end up triggering seizure like activity, but that is just because migraines seem to enjoy messing with the women in my family by throwing in odd things. The other side effect of the last 4 plus years is having a Little Bug that seems to think that no matter what she is sick or needs to be sick to get the super amount of attention. However, since we are aware of just what is going on with that, and our full attention has turned to moving past that. There is a search for a good counselor going on via doctors in Tucson and a wonderful school nurse here to help us out. It has put me in a role of playing the mean Mommy that I don't think any of us really care to play, and I can say that doing the tough love thing is one that will make you want to stand up and accept the award for worst mother on the planet. I don't think that I am though...I think I'm doing what in the long run will be best for her. Now if I could just get her to stop throwing me such evil dirty looks. I do know that this chapter will come to close too, and hopefully before one of us has no hair left because of pulling it out from trying to deal with each other.
Saturday, December 6, 2008
Tuesday, October 14, 2008
What is normal?
Alright everyone who reads here knows that Little Bug had a sleep deprived EEG last Friday. Today I got a phone call from the Center for Neuroscience with probably the most amazing news I have heard in the last 3 years 8 months. Little Bugs EEG was normal! NORMAL!! No spikes, no slow sharp waves, it was flipping normal! No epileptic activity of any kind. It is what we have been so wanting to hear, it is what hearing sent Little Bug jumping up and down in the living room screaming at the top of her lungs that she was normal again finally. Which by the way will make sisters wonder just how normal you really can be if you are jumping up and down screaming it. I'm not sure happy is enough to describe just how Little Bug feels about hearing this news. Both Army Guy and myself are wondering where this takes us now since we know that in the last couple of weeks she has had seizures, but now that the EEG is showing normal activity it is leading us to the thought about the migraines. After talking to the nurse today the doctor called to talk about that and that come next month for her appointment we will be having to talk about it. Little Bug of course wants to come off of the Depakote that has been part of her daily routine for just shy of 3 years, and just shy of 4 years since the onset of the Epilepsy. I'm not so sure that dropping medicine is going to be part of the plan next month since the depakote is also being used to fight migraines. For right now though Little Bug is viewing today as the best pre-birthday ever. For right now I am going to agree with her because even if it is migraines causing the current seizures for right now tonight that isn't a thought going through her mind. For the first time in about 4 years Little Bug isn't thinking about Epilepsy...she is just back to being normal.
