What is normal?

100_9434, originally uploaded by torri_g.

Alright everyone who reads here knows that Little Bug had a sleep deprived EEG last Friday. Today I got a phone call from the Center for Neuroscience with probably the most amazing news I have heard in the last 3 years 8 months. Little Bugs EEG was normal! NORMAL!! No spikes, no slow sharp waves, it was flipping normal! No epileptic activity of any kind. It is what we have been so wanting to hear, it is what hearing sent Little Bug jumping up and down in the living room screaming at the top of her lungs that she was normal again finally. Which by the way will make sisters wonder just how normal you really can be if you are jumping up and down screaming it. I'm not sure happy is enough to describe just how Little Bug feels about hearing this news. Both Army Guy and myself are wondering where this takes us now since we know that in the last couple of weeks she has had seizures, but now that the EEG is showing normal activity it is leading us to the thought about the migraines. After talking to the nurse today the doctor called to talk about that and that come next month for her appointment we will be having to talk about it. Little Bug of course wants to come off of the Depakote that has been part of her daily routine for just shy of 3 years, and just shy of 4 years since the onset of the Epilepsy. I'm not so sure that dropping medicine is going to be part of the plan next month since the depakote is also being used to fight migraines. For right now though Little Bug is viewing today as the best pre-birthday ever. For right now I am going to agree with her because even if it is migraines causing the current seizures for right now tonight that isn't a thought going through her mind. For the first time in about 4 years Little Bug isn't thinking about Epilepsy...she is just back to being normal.

Hooked up Little Bug

Hooked up Little Bug, originally uploaded by torri_g.

Well, we made it through the sleep deprivation and only a little on the crabby side. Little Bug had her EEG done yesterday, and this was her first smile for the day because she knew as soon as she was hooked up a power nap was about to be allowed. I think the tech became her new best friend yesterday morning because she was going to let her close her eyes and sleep.

Now according to the tech the doctor will have the results as of yesterday afternoon, and I should be able to call this week and hear those results. I'm still not going to hold my breath for that, but gosh that would be great if that is how is works out. I would like to hope that this EEG was a normal one, but after doing this for four years now there are a couple of things that I just know. When the tech asks you all kinds of questions before the testing begins, and comes out a couple of times during the test to verify information...odds are that they are already seeing things on the test. When they ask about what medication and have a look on their face of "Are you sure she took it?" Odds are really good that there is something going on via the test. However, we shall see once we get the results.

I hope that everyone has a good weekend, Little bug and I are probably going to spend today trying to catch back up on the sleep that we lost because of the test, so a lazy Saturday seems to be in order.

48 hours

P6172823, originally uploaded by torri_g.

Little Bug doesn't know it yet, but in less than 48 hours she will be one very tired little girl. She has an EEG scheduled for Friday morning in Tucson. We are not doing a 72 hour ambulatory EEG, just a sleep deprived same day one. Oh wait...sleep deprived for her means sleep deprived for me too! Well thank goodness Army Guy has Friday off because he is going to have to do the driving up there and back. The real fun part of this is going to be keeping her awake for the hour and a half drive up there Friday morning. Heck it should be fun keeping myself awake on the ride up there. Little Bug should be happy that it will just be the one day and not having to wear the equipment for 72 hours. I know that I'm happy that in case no one remembers to call me with results or get back to me in the next couple of weeks, her next doctors appointment is the day before Thanksgiving, so no waiting 3 months to hear what the EEG showed. For just a little more added fun I have to take her this afternoon to get some blood work done, which she also doesn't know and for a very good reason! Her and Sweetpea are my pass out kids when it comes to getting blood work done, and if they know in advance they will have themselves completely freaked out before we even get to the lab.

Anyway, the Mom in me is hoping that this is a clear EEG, but in light of everything that has gone on here with Little Bug I'm doubting it will be. I happy with how quickly this EEG has been set up, just not real thrilled with the fact that I had to sink to such a mean level to get someone to finally listen to me. Oh well...every now and then we all have to sink to a mean level to get the results that should have just been common sense.

I hope that everyone finds some calm in their week, based on reading my list of regular blogs, there doesn't seem to be a lot of calm going on.